When a person is living with Alzheimer's disease, people around them often have to coordinate appointments, shopping and several trips to the home. The challenge is not just to find help: everyone needs to know which intervenes, which has changed and which follows. Here is a practical method for close caregivers. For medical decisions and needs assessment, be accompanied by health professionals and competent services.
Who can help a family caregiver with Alzheimer's?
The family doesn't have to do it alone. Depending on the person's needs, they can apply to their doctor, a care team, a home help service, an accompaniment and respite platform or a day reception. The CNSA Public Portal on Home Living with Alzheimer presents these solutions and the interlocutors to turn to.
Start with a small coordination circle. Name a referent person for the steps, another for the races and appointments, then identify who can take over in case of unexpected. A relative who lives far away can provide calls, reservations or administrative follow-up; he does not need to live next door to contribute.
Build a readable home help schedule
Enter regular passages and appointments in the same shared home help planning. For each entry, specify the time, the speaker, the object of the visit and the person to contact if it is to be moved. Also add the moments without a planned presence: they make visible the beaches where the family has to check that the organization is suitable.
Example: on Monday morning, the auxiliary of life passes; on Tuesday, a girl accompanies her parent to a consultation; on Wednesday, a neighbour brings the races. If the consultation changes date, the person who organizes the transport sees it in the same place as the rest of the family. what is planned. He does not say, by himself, what happened.
Only one person can update the schedule, but all authorized participants need to know where to read the latest version. Avoid letting several conflicting calendars coexist in message groups.
Transmit observations after each passage
One digital care journal is used to record brief and dated facts useful to the next person. For example: "dining meal taken together", "meeting postponed to Thursday", "renewal of the order to be requested". Distinguish an observation of a diagnosis or medical instruction.
- Note who made the pass and when.
- Indicate what has been done and what remains to be done.
- Report a question to the competent professional rather than improvise a medical response.
- Limit reading to those authorized to participate in the accompaniment.
To prepare an appointment, read the latest events of the notebook and questions left by the relatives. If the person's condition changes or you worry, contact his health care team; in case of emergency, call 15 or 112. A coordination tool does not replace a medical opinion.
Take over before exhausting
The respite is getting ready: who knows the habits of the loved one, who can ensure the next passage and where to find the useful numbers? If all these answers are based on the primary caregiver, even a short absence becomes difficult. public guide to support and respite platforms explains where to get information, support and relay solutions.
Prepare a simple sheet: priority contacts, appointments to come, practical information allowed to share and tasks in progress. Then try on half a day with the person who takes over. Tribulys guide on family relaying details this transition.
Family members can also be trained. The public portal describes a training for caregivers with Alzheimer'sInquire early helps to ask more precise questions to the accompanying teams.
What aids and procedures should be checked?
The Personalized Autonomy Allowance (APA) can help fund needs related to the loss of autonomy of an elderly person, after assessing his or her situation and according to the rules in force. APA sheet by Service-Public.fr and your department to verify eligibility and procedures. Other arrangements exist depending on the situation; our page on carers' aids provides starting points, without replacing an audit with the organizations.
Before an exchange with the services concerned, gather the contact details of the relative, the needs observed at home, the current planning and the family's questions. This preparation allows to describe the real situation rather than an ideal day.
Use Tribulys to coordinate the family
Tribulys brings together a shared calendar, a care journal, tasks and useful information in a common space. The family can invite people involved in accompaniment of the loved one and give context to each passage, without turning a private conversation into a follow-up file. how to choose an app for family caregivers and guide for the coordination of carers to start with a few people and specific needs.
To be noted: To accompany a loved one with Alzheimer's, combine an identified medical contact, a shared relay schedule, factual transmissions and a known family respite solution. The tool helps to circulate information; care decisions are made with the competent professionals.
Put this organisation into practice with Tribulys
Keep your care journal, shared calendar, tasks, medication tracking and emergency information together. Start for free and invite the relatives and professionals involved in your loved one’s care.